National Commisioning Group - Anyone Expert on Orphans?

Posted 10th September 2009, 20:54:20

Anyone out there got any experience of gaining funding for ultra-orphan drugs from the NCG?

Posted 23rd September 2009, 13:45:39

Don't know anyone directly but have you tried http://www.orpha.net - I recall they had a directory of companies / people and you may find someone useful

Posted 29th October 2009, 18:21:50

HHS - I just loaded up a new event by NextLevel Pharma on Orphan Drugs if you are interested:

http://www.pharmapho...n_ultraorphan_drugs/

Posted 24th November 2009, 10:48:56

There is also a LinkedIn group focussed on Orphan drugs - can't remember the name exactly but search for Orphan Drugs under groups

Posted 4th December 2009, 13:35:19

It's the Orphan Pharmaceuticals & Biopharmaceuticals Group.

Not very big though I seem to recall.

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