Patient Advocacy Groups Say Relationships with Pharmaceutical Companies Must Evolve to Keep Pace with Significant Changes in Healthcare Industry
WASHINGTON, D.C. – June 1, 2015– As patients and caregivers are confronted with a dramatically changing healthcare landscape, American patient advocacy organizations are evolving the work they do for these communities. The advocacy groups would like to see their relationships with pharmaceutical companies also change to keep pace, according to a report released today by the inVentiv Health Public Relations Group.
The report, “The New Partnership Paradigm: What Patient Advocates Seek from Pharmaceutical Partners,” is based on more than two months of interviews with nearly four dozen patient advocacy organizations representing patients with a variety of diseases and conditions, including cancer, mental health, and rare diseases. It highlights areas in which the patient advocates would like to see change in their relationships with pharmaceutical partners.
“Our research looked at how the external changes in healthcare, such as the Affordable Care Act, have affected the long-standing relationships between pharma and advocacy groups,” said Heather Gartman, Managing Director of inVentiv Health PR Group’s Washington, D.C. office, who helped lead the research. “Those changes are likely to have significant impact on how both sides regard the benefits of their relationship and work together in the future.”
The research revealed several core areas that form a patient advocate ‘wish list’ of changes intended to create greater mutual benefits and stronger relationships. The list of new best practices includes:
·Providing input earlier, not only in clinical trial design and execution but also in disease awareness and education campaigns;
·Strengthening and continuing to keep an open, ongoing dialogue regarding unmet needs, reporting, and information exchange;
·Creating additional patient registries that can be used for drug trial recruitment and outreach;
·Rewarding and respecting collaboration among patient groups; and
·Improving transparency and authenticity.
In the interviews, patient advocates said that these and other proposed changes detailed in the report will move what has largely been a transactional relationship with pharma companies to a more authentic partnership with industry.
For example, advocacy groups noted that changes in insurance plan benefits, including narrower physician networks, have impeded patient access to specialists. Individuals struggling with cancer or other grave illnesses often don’t understand how these changes will affect their care. The narrowing of networks is of concern to patients and pharmaceutical companies and is an issue on which they could partner to find solutions.
Several patient groups also acknowledged the need for greater collaboration and coordination among competing advocacy organizations. They suggested that pharma companies could encourage this trend – for example, by giving preference on funding decisions to organizations that collaborate.
“We undertook this research to assist our clients in both the pharmaceutical sector and the advocacy community in better understanding each side’s needs,” said Lisa Stockman, President of Public Relations and Medical Communications at inVentiv Health. “Such understanding leads to more effective partnerships and better support for patients facing new challenges in managing their healthcare and supporting research.”
The full report based on interviews with 43 organizations is available here. For additional information on the research or services inVentiv Health PR Group provides to patient advocacy organizations and pharmaceutical companies, contact Heather Gartman at firstname.lastname@example.org.
About inVentiv Health Public Relations Group inVentiv Health Public Relations Group is comprised of five global health communications agencies – Allidura Consumer, Biosector 2, Chamberlain Healthcare PR, Chandler Chicco Agency and Haas & Health Partner –that help launch brands and build the reputations of companies working to improve human health. With an integrated approach to communications, inVentiv Health PR Group agencies offer best-in-class capabilities spanning public relations, digital and social media, medical and scientific education, and analytics and measurement. Our teams create communications that drive corporate value, enhance brand perception, and deliver on the bottom line.
inVentiv Health PR Group is part of inVentiv Health and has offices in New York, Los Angeles, Washington, London, and Paris, and global healthcare network operations around the world. For more information, visit inVentivHealth.com/PR.
About inVentiv Health inVentiv Health is a global provider of best-in-class clinical development and comprehensive commercialization services, seamlessly linking the capabilities of a leading, global Clinical Research Organization (CRO) with a unique Contract Commercial Organization (CCO). inVentiv Health helps clients improve performance, reduce risk, and speed much-needed therapies to market. With 13,000 employees providing services to clients in 70 countries, our global scale and broad expertise make us an attractive strategic partner for companies developing and delivering medicines in a complex operating, regulatory, and reimbursement environment. Our clients include more than 550 life sciences companies, including all 20 of the largest biopharmaceutical companies in the world. inVentiv Health, Inc. is privately owned by inVentiv Group Holdings, Inc., an organization sponsored by affiliates of Thomas H. Lee Partners, L.P., Liberty Lane Partners and members of the inVentiv management team.
inVentiv Health brings business strategy to science and scientific expertise to business for the better treatment of patients worldwide. For more information, visit inVentivHealth.com.
This press release contains forward-looking statements within the meaning of the Private Securities Litigation Reform Act of 1995. Such forward-looking statements involve known and unknown risks that may cause our performance to differ materially. These forward-looking statements reflect our current views about future events and are subject to risks, uncertainties and assumptions. We wish to caution readers that certain important factors may have affected and could in the future affect our actual results and could cause actual results to differ significantly from those expressed in any forward-looking statement. Such factors include, without limitation: the impact of our substantial level of indebtedness on our ability to generate sufficient cash to fulfill our obligations under our existing debt instruments or our ability to incur additional indebtedness; the impact of customer project delays, cancellations and terminations and our ability to sufficiently increase our revenues and manage expenses and capital expenditures to permit us to fund our operations; the impact of any future acquisitions; the impact of any change in our current credit ratings or the ratings of our debt securities on our relationships with customers, vendors and other third parties; the impact of any additional leverage we may incur on our ratings and the ratings of our debt securities; our ability to continue to comply with the covenants and terms of our debt instruments and to access sufficient capital under our credit agreement or from other sources of debt or equity financing to fund our operations; the impact of any default by any of our credit providers; our ability to accurately forecast costs to be incurred in providing services under fixed price contracts; our ability to accurately forecast insurance claims within our self- insured programs; the potential impact on pharmaceutical manufacturers, including pricing pressures, from healthcare reform initiatives or from changes in the reimbursement policies of third-party payers; our ability to grow our existing client relationships, obtain new clients and cross-sell our services; the potential impact of financial, economic, political and other risks, including interest rate and exchange rate risks, related to conducting business internationally; our ability to successfully operate new lines of business; our ability to manage our infrastructure and resources to support our growth, including through outsourced service providers; our ability to successfully identify new businesses to acquire, conclude acquisition negotiations and integrate the acquired businesses into our operations, and achieve the resulting synergies; any disruptions, impairments, or malfunctions affecting software as well as excessive costs or delays that may adversely impact our continued investment in and development of software; the potential impact of government regulation on us and on our clients; our ability to comply with all applicable laws as well as our ability to successfully adapt to any changes in applicable laws on a timely and cost effective basis; our ability to recruit, motivate and retain qualified personnel; the impact of impairment of goodwill and intangible assets and the factors leading to such impairments; consolidation in the pharmaceutical industry; changes in trends in the healthcare and pharmaceutical industries or in pharmaceutical outsourcing, including initiatives by our clients to perform services we offer internally; our ability to convert backlog into revenue; the potential liability associated with injury to clinical trial participants; the impact of the adoption of certain accounting standards; and our ability to maintain technological advantages in a variety of functional areas, including sales force automation, electronic claims surveillance and patient compliance. Holders of our debt instruments are referred to reports provided to investors from time to time and the offering memoranda provided in connection with the issuance of our notes for further discussion of these risks and other factors.
October 20, 2014, NEW YORK, NY – Adult millennials, the coveted 18 to 32-year-old demographic, highly value happiness. However -- according to a new US survey by Allidura Consumer and GSW, both part of inVentiv Health, and Harris Poll -- there appears to be a big tension between the aspirations for happiness – 97% say it’s important -- and the well-documented way millennials are currently living: more stressed, anxious and depressed than any other living generation.[i]
The online survey of 3,530 teens and adults, including 2,015 adult millennials uncovered behaviors and attitudes about health that are unique or consistent across generations. The goal was to better understand today’s health consumers in order to inform and facilitate better interactions with brands.
“As society shifts its focus from relying on HCPs to treat disease to taking individual responsibility for prevention and wellness, we wanted to understand how attuned millennials are to their health now, and how it factors into their everyday decision making,” said Tracy Naden, managing director of Allidura Consumer. “What we learned is that millennials’ mindset about health is very much an ever-present personal journey of wellness fueled by food, exercise and social connections.”
The survey report, “Millennial Mindset: The Worried Well,” notes that as creators of the quantified-self movement, millennials are often perceived as healthier than their Boomer counterparts. Yet, one commonality this generation may not have expected at such an early stage of adulthood is that they worry about their health almost exactly as much as Boomers (77% of both generations say they worry at least a little about getting a serious illness; 77% of adult millennials and 74% of Boomers say they worry at least a little about affording the cost of healthcare). In fact, millennial adults worry about their access to healthcare even more than Boomers (69% vs. 60% worry at least a little).
Health is a Constant State of Mind
The study suggests that millennials see the mind-body connection as important to overall health. With 69% of millennials reporting they stress about their personal health, it seems many are beginning to prioritize mental well-being as a key factor to physical health. In fact, survey results show that 35% of millennials believe seeing a therapist or psychiatrist regularly is important to good health.
Millennials are the first generation to grow up with “doctor Google” at their fingertips. According to Derek Flanzraich, CEO and Founder of Greatist.com, a popular health and wellness website for millennials, “There's never been more health information for millennials to find, so it only make sense that it's never been more difficult for them to properly screen, analyze and act on the right data.” This is supported by survey data that finds 37% of millennials sometimes self-diagnose with health problems that they don’t have. Perpetuating this “search and stress” cycle, 44% say that viewing health information online causes themto worry about their health.
“For millennials, the question isn’t who can help them be healthy, but rather what can help them,” said Leigh Householder, chief innovation officer at GSW. “To millennials, physical health is intricately connected with mental health. So, for brand marketers to be successful in reaching this audience, they must think about health and wellness the same way, and create solutions that inspire millennials to experience health at any given moment and throughout all aspects of their lives.”
To read more about the millennials’ health journey and how brands can reach this health-conscious consumer, download the “Millennial Mindset: The Worried Well” report here.
About the Millennials and Health Study
The millennials and health survey was administered online within the United States between May 21 and June 4, 2014, among 500 US teens ages 13-17 (Millennial teens); 2,015 US adults ages 18-32 (Millennial adults); 508 US adults ages 33-49 (Gen Xers); and 507 US adults ages 50-68 (Baby Boomers). Harris Poll conducted the research.
About Allidura Consumer and GSW, Part of inVentiv Health
Allidura Consumer is a health and wellness communications agency that specializes in creating enduring alliances between brands and those that influence them. The programs and counsel Allidura offers have been tapped by a full range of consumer product companies, including global food and beverage brands, nutritional supplement makers, over-the-counter health and beauty products, and health technology companies. The agency specializes in integrated communications campaigns, corporate reputation management, content strategy and message development, influencer mapping and engagement, media relations and training and social media and employee engagement. You can learn more about Allidura Consumer at www.allidura.com.
GSW is a full-service healthcare communications agency that goes beyond advertising to create personalized brand experiences that involve, inspire, educate and activate people through ongoing brand journeys. MedAd News’ and MM&M’s 2014 Agency of the Year, GSW turns messages into brand experiences that transform people into success stories. Building partnerships with pharmaceutical, biotech and health-and-wellness clients in 18 major markets around the world, GSW creates marketing solutions through a comprehensive and wide array of services including advertising,
digital and closed loop marketing, strategic insight, branding, communications planning, predictive modeling, market access strategies and media and market research. The agency is led by a team of best-in-class marketers who have experience with a variety of stakeholders such as healthcare professionals, patients, caregivers, payors and consumers. For more information, visit http://www.gsw-w.com.
Allidura and GSW are part of inVentiv Health, Inc., a life science knowledge and services company purpose-built for the new healthcare marketplace. inVentiv has created a new model by converging a vast range of essential services to fully align with clients’ development and commercialization goals. For more information, visit www.inVentivHealth.com.
About The Harris Poll
Over the last 5 decades, Harris Polls have become media staples. With comprehensive experience and precise technique in public opinion polling, along with a proven track record of uncovering consumers’ motivations and behaviors, The Harris Poll has gained strong brand recognition around the world. The Harris Poll offers a diverse portfolio of proprietary client solutions to transform relevant insights into actionable foresight for a wide range of industries including health care, technology, public affairs, energy, telecommunications, financial services, insurance, media, retail, restaurant, and consumer packaged goods. Contact Harris Poll for more information.